Here is a video I made for my RS lesson on the Wentworth letter. Enjoy!
Sunday, August 9, 2009
Thursday, August 6, 2009
Overcast Day In Salt Lake
Overcast skies make for the most beautiful pictures and Kevin and I finally got Kris to let us take some pictures of him and Kevin made me put them up on facebook, haha. It was overall a fun day, I was pretty sore from the Lupus, but I made it, even if it was barely. I get to go to California in 8 days, and they didn't need me at work today, so I really should be packing or at least working on my lesson for church Sunday, but as you can see, I'm not doing so well on either one.
Wednesday, August 5, 2009
Photography
So, I have recently developed a love for good photography. (And not so good sometimes, I'm not that great, but I love doing it) Here are some pictures, they are slightly old, but they are from when Brent and I went to the Hare Krishna Hindu Colors Festival. It was fun, here are some of the small moments we captured. P.s. Sorry the pink kinda makes me look like a creeper. Some kid threw a huge handful of pink at me
Tuesday, July 28, 2009
A Cure?!
Wow, it might actually be real. That would be so great if there was an end to Lupus. It's kinda weird though, I have never met my grandfather who died of Lupus, but just having the same disease he died from gives me a connection to him. I know what kind of pain he was going through, when he died. Maybe not fully because he had SLE, but its kinda weird how things work themselves out. Anyways, check out the article. It's kind of exciting!
First Potential Lupus-Specific Treatment in Sight!
July 20, 2009
BENLYSTA™ Successful in First of Two Pivotal Clinical Trials
Today, Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) announced positive results from a year-long clinical trial of BENLYSTA for treating lupus. When the 52-week study concluded, the lupus patients who were treated with BENLYSTA had improvement in overall disease activity without clinically significant flare-ups in one or more isolated organs when compared to patients who received the placebo (inactive agent). The patients receiving BENLYSTA also were able to reduce their intake of steroid medications. The study is the largest ever to be completed for lupus and the first Phase III (late stage) trial of a new biologic immune therapy for lupus to succeed in meeting its primary endpoint and most of its secondary endpoints.
Sandra C. Raymond, President and Chief Executive Officer of the Lupus Foundation of America (LFA) issued the following statement.
"For people with lupus and their loved ones, this is an historic day! With no new drugs for more than 50 years, since the Eisenhower Administration, the news today indicates that it is possible to develop new, safe, and effective therapies for lupus. We are greatly encouraged by the positive top-line data which shows that HGS’ 52-week BENLYSTA study met its primary endpoint. These results provide hope that this complex chronic autoimmune disease can be brought under control and that, eventually, a cure can be found for the estimated 1.5 million Americans and more than 5 million people worldwide living with lupus.
"We look forward to hearing the results, this fall, of a longer-term Phase III clinical study of BENLYSTA. The data from both studies will be evaluated by the U.S. Food and Drug Administration (FDA). Should the FDA ultimately approve BENLYSTA, it would become the first drug successfully developed to specifically treat lupus since the disease was discovered more than a century ago.
"Lupus is a complex disease and not every therapy will be appropriate for all patients. Each person with lupus is unique and it is likely that successful management of lupus will require a number of therapies, perhaps used in combination with each other. The LFA and its Medical-Scientific Advisory Council urge the federal government and industry to greatly step up their research efforts on lupus so that physicians have a complete arsenal of therapies at their disposal to provide the individualized treatment that lupus requires.
"We are grateful to Human Genome Sciences and GlaxoSmithKline for their pioneering efforts to develop a new, safe, effective and tolerable treatment for lupus, to the physicians who have passionately committed to researching this disease, to the companies who continue to invest in finding new treatments, and to the thousands of people with lupus who have volunteered and participated in clinical studies over the years so discoveries such as this one could be possible.
"Meanwhile, the LFA will continue to implement its initiative entitled, A New 21st Century Approach to Lupus Healthcare, to ensure the ongoing advancement of the science and medicine of lupus to meet the multi-dimensional needs of people with lupus"
First Potential Lupus-Specific Treatment in Sight!
July 20, 2009
BENLYSTA™ Successful in First of Two Pivotal Clinical Trials
Today, Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) announced positive results from a year-long clinical trial of BENLYSTA for treating lupus. When the 52-week study concluded, the lupus patients who were treated with BENLYSTA had improvement in overall disease activity without clinically significant flare-ups in one or more isolated organs when compared to patients who received the placebo (inactive agent). The patients receiving BENLYSTA also were able to reduce their intake of steroid medications. The study is the largest ever to be completed for lupus and the first Phase III (late stage) trial of a new biologic immune therapy for lupus to succeed in meeting its primary endpoint and most of its secondary endpoints.
Sandra C. Raymond, President and Chief Executive Officer of the Lupus Foundation of America (LFA) issued the following statement.
"For people with lupus and their loved ones, this is an historic day! With no new drugs for more than 50 years, since the Eisenhower Administration, the news today indicates that it is possible to develop new, safe, and effective therapies for lupus. We are greatly encouraged by the positive top-line data which shows that HGS’ 52-week BENLYSTA study met its primary endpoint. These results provide hope that this complex chronic autoimmune disease can be brought under control and that, eventually, a cure can be found for the estimated 1.5 million Americans and more than 5 million people worldwide living with lupus.
"We look forward to hearing the results, this fall, of a longer-term Phase III clinical study of BENLYSTA. The data from both studies will be evaluated by the U.S. Food and Drug Administration (FDA). Should the FDA ultimately approve BENLYSTA, it would become the first drug successfully developed to specifically treat lupus since the disease was discovered more than a century ago.
"Lupus is a complex disease and not every therapy will be appropriate for all patients. Each person with lupus is unique and it is likely that successful management of lupus will require a number of therapies, perhaps used in combination with each other. The LFA and its Medical-Scientific Advisory Council urge the federal government and industry to greatly step up their research efforts on lupus so that physicians have a complete arsenal of therapies at their disposal to provide the individualized treatment that lupus requires.
"We are grateful to Human Genome Sciences and GlaxoSmithKline for their pioneering efforts to develop a new, safe, effective and tolerable treatment for lupus, to the physicians who have passionately committed to researching this disease, to the companies who continue to invest in finding new treatments, and to the thousands of people with lupus who have volunteered and participated in clinical studies over the years so discoveries such as this one could be possible.
"Meanwhile, the LFA will continue to implement its initiative entitled, A New 21st Century Approach to Lupus Healthcare, to ensure the ongoing advancement of the science and medicine of lupus to meet the multi-dimensional needs of people with lupus"
Tuesday, March 24, 2009
Fall into Place
It's amazing how, when nothing seems to be working, somehow it all just magically falls into place. I'm not really sure, how or even if I'm referring to something specific, but it just works out. I guess I shouldn't be surprised at the hand of the Lord in my life. Its just interesting how sometimes, I am so confused and at a loss for what to do next, an
d a minute later everything is completely clear. It can be compared a little bit to the struggle of survival for this flower. It struggles constantly to receive nourishment, and at times the shadow of the towering trees or the lack of water in the ground, robs it of what it needs. Then all the sudden, rain comes, or the shadow moves, leaving the flower to receive all that it needs, its a wonderful thing.
Wednesday, January 14, 2009
Sports Fans
So, I know no one reads this, but it is a good outlet for my frustrations. Ok, first of all, I went to a basketball game tonight, because I like basketball, and because I wanted to see my team play, and its fun. Well, I sat in front of some people who knew some team members, not only did they go on about them the entire game, but, they failed to know the rest of the players names, but claimed to be so into the game. They never stopped talking to watch the game either. And when they weren't talking about themselves, they were talking bad about the other players. Oh, and I should also mention, that on the other side of me were two girls who talked the entire game, in another language, and took pictures of themselves. I guess it is good that people were at the game, but it just ticks me off when they don't pay attention or trash talk their own team. What is the point of going to support them, if you don't actually support them? If you are good enough to trash talk what they are doing, why don't you get on the floor or the field and show us how its done. The players are human just like everyone else, and they have their good and bad days, there is really no reason to say because someone missed a shot or threw a bad pass that they are horrible and should be thrown out of the game or the sport in its entirety. Man up people. If you like your team, support them, no matter what. Maybe if they feel like people care about them, they will be willing to play harder for their fans. It makes sense to me anyways....
Tuesday, December 23, 2008
Changes
Its crazy how much different doctors think than one another. I started a new doctor this past week and already he is telling me I might not have lupus, because I'm missing some of the key signs. I'm not quote sure what to think of that, they did a bunch of blood tests on me to determine whether I did or not. I don't know if he is planning on calling me or if there will be a letter for me in the mail when I get back. It should be interesting to see. He did all these weird tests on me that have never been done on me before, including checking my fingernails for a "telling sign" of lupus. He just put me back on the plaquenil because he said that he didn't want to put me on prednisone because of what it does to my fingers, and muscles, etc. It will definitely be interesting to see what happens with that. I wish that the doctors would make up their mind, or at least find a medicine that didn't make me so sick or effect me so strongly, it really would be a miracle at this point.
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